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Showing posts from May, 2022

My Wish Bone Story

      Today, May 6th, is recognized all around the world as Wish Bone Day. Wish Bone Day is a day where people come together to bring awareness to a bone condition, Osteogenesis Imperfect. As this day approached, I remembered the traumatic way my parents found out I was diagnosed with this bone condition.       Imagine being a 3-year-old child watching your parents in a panic and being taken away from them. Imagine not fully understanding what was happening around you. All you know is that strangers are taking you from the people you know to be kind, loving, and compassionate. That was me; I was this 3-year-old child. In February 1998, not shortly after my 3rd birthday, my parents were exhausted from being up all night due to my constant crying and nonstop coughing. They assumed it was just a cold and tried everything they knew, but nothing helped. After speaking with my pediatrician, they decided to take me to Scottish Rite emergency room.  Upon arrival, the hospital staff did their r

Finale: She Believed She Could but She Didn't Because It Wasn't Accessible

  Now, I am entering my senior year of college. After obtaining my driver’s license, it seemed like everything started falling into place! Once my family and I started reaching out to insurance companies inquiring about insurance policies, Voc Rehab told us that the required insurance was not the same as typical insurance. I couldn’t just be added onto my parents’ current policy. The policy had to be broken down and itemized to show that it would cover the $50,000 worth of modifications. Noone had ever explained this to us, this was another obstacle in my driving journey. I reached out a friend from high school, Aliyah, who worked at a local State Farm Insurance company. I explained to her what I needed and what Voc Rehab was asking for. It took a few weeks, but she was able to provide the coverage and itemized breakdown showing the policy covering the modifications. She was able to get me exactly what I needed to move forward with the process. Once I was approved for the loan and